Welcome! This section was formerly called The Special Needs Spotlight, but I am currently updating it to the Disability + Differences Spotlight. Each Friday I spotlight a different child with a disability or medical condition and their amazing family, or an individual who is disabled themselves. If you would like to participate in the spotlight or know anyone who would, please email me at thislittlemiggy at gmail dot com. Please include a brief summary of your child and their condition, along with links to your blog and pictures if applicable. Thanks!
Spotlights:
W (Klinefelter Syndrome or 47XXY)
Braden (Acute Flaccid Myelitis + severe speech delay)
Jessica (limb difference)
5 Children with Special needs + Amputee Husband (multiple issues)
Nora (agenesis of the corpus callosum or ACC)
Naylah (trisomy 5q)
Dylan (Eosinophilic Esophagitis)
Rosemarie (ongenital pseudarthrosis of the tibia (CPT) and neurofibromatosis type 1 (NF1))
Frankie (angleman syndrome)
Charlotte (Craniosynostosis and others)
Wesley James (Down Syndrome)
Eleanor (limb differences, fibular hemimelia)
Will +Harri (pendred’s syndrome, deaf + cochlear implants)
Colton (DRYK1A syndrome)
Eli (down syndrome)
Noah (Congenital heart defect or CHD–posthumous spotlight)
Charlie (autism)
William (pearson syndrome)
Elise (PANDAS)
Kuba (rare genetic mutation–triplication of 1p36.31-33)
B (autism spectrum)
Matilda (born with acute liver failure)
Collin + Kenley (autism and arthrogryposis multiplec congenita)
Corinne (epidermolysis bullosa or EB)
Karin (cerebral palsy)
Koko (CHARGE syndrome)
Ryder (asparagine synthetase deficiency disorder)
Ruby (oculocutaneous albinism + hearing impairment)
Paul + Simon (congenital heart defect or CHD)
Diego (autism)
Jillian + Lydia (undiagnosed genetic condition)
Owen (epilepsy + more)
Abiella (cerebral palsy, microcephaly, + more)
Hannah, Katie, Nano + Davy (ehlers-danlos syndrome)
Jahleel (prader-williams syndrome)
Susannah (autism)
Taylor (autism)
Luke (globally delayed)
Eli (cri du chat)
Jena (noonan syndrome)
Jackson (posthumous spotlight bmmrd)
Brother, Sister, Baby (fragile x siblings)
Olivia (congenital psudoarthrosis of the fibula)
Owen (lissencephaly)
Emme (adhd, bipolar)
Elizabeth (one leg, fused spine and pelvis)
“L” (childhood apraxia of speech, sensory processing disorder)
Esme (medically fragile, developmentally delayed)
Tatum (down syndrome)
Jack + Charlie (M-CMTC, autism)
Tallulah (twin to twin transfusion syndrome)
Sarah (apert syndrome)
Liesel + Wells (limb differences and autism)
Elias (krabbe disease)
Lynn (hearing impaired)
Amanda (cp, ehler-danos, hasmitos, etc)
Bjorn (undiagnosed, seizures, autism)
Piper Grace (premie, 95 days in NICU)
Ella (type 1 diabetes)
Rebekah (paraplegic, wheelchair user)
June (tuberous sclerosis, epilepsy)
Harper (missing part of 18th chrom., autism)
Amanda (multiple, including cp, ehler-danos syndrome)
Paisley (childhood interstitial lung disease [chILD])
Wyatt (severe food allergies)
Sophia (angelman syndrome)
Zachy and Evan (multiple, including epilepsy+autism)
Alexis (RAD, multiple)
Will (partial del. short arm, 8th chrome.)
John Paul (TAR syndrome)
Hamilton (moebius syndrome)
Elsie (cerebral palsy)
Ruby (multiple, including vision problems)
Nathanial (FPIES+TBI)
Della (brainbridge-ropers syndrome–mutation of asxl3 gene)
Lucy (NKH-non ketotic hyperglycinemai)
*Lamp* (limb differences)
Parker (hypochondraplasia–dwarfism)
Keegan + Addie Grace (limb differences + autism)
Sawyer (autism spectrum)
Brielle (dwarfism)
Cooper (dystonic quadriplegia cp + rolandic epilepsy)
‘Tough Guy’ (OEIS complex)
Silas (9p23 deletion 16q trisomy)
Brantley (MECP2 duplication)
Selena + Michael (adopted + HIV positive)
Noah (trisomy 8 + cerebral palsy)
Liam + Lisa (club foot/kidney disease)
Luke (autism)
Lily (congenital heart defect)
Raisa (multiple)
Renee (limb differences)
Kyle Maynard (limb differences)
Staci (blind, Paralympic skier)
Peter (FPIES)
Bridger (multiple needs, undiagnosed)
Rachel (spina bifida)
Mary (update Down syndrome diagnosed with leukemia)
Ellie (trisomy 4p)
Aviya (ehlers-danlos syndrome)
Elizabeth and Luke (craniosynostosis)
Kelly and Bob (autistic mother and son)
Tucker (autism-like symptoms)
Lily (rubinstein-taybi syndrome)
Charlie and Ingrid (microprimees, Ingrids unexpected passing)
Lydia (MCADD)
Jonas (Rhabdomyosarcoma)
Brenna (Harlequin Ichthyosis)
Genevieve (undiagnosed developmental delay)
Imogen (retts syndrome)
Logan (x-linked myotubular myopathy)
Steven (cerebral palsy, epilepsy, and brain damage)
Michael (brain tumor, caused blindness)
Daniel (autism)
Wyatt (FPIES)
Inga’s Kids (fetal alcohol syndrome)
Asia (epilipsy and more)
Kalvin (multiple congenital heart defects)
Nick (type 1 diabetes)
Apollo (double aortic arch and more)
Julianna, Blake and Nathan (varying)
Kara and Adam (osteogenesis imperfecta)
Josette (jejunal atresia type IIIb)
Lily (osteogenesis imperfecta)
Maddy (dwarfism)
Aroush (limb differences)
Leah (spina bifinda)
Raeann (nkh–nonketotic hypoglycemia)
Alicen (multiple)
Kaylee (adhd and anxiety)
Max (multiple behavioral/sensory issues, allergies)
Violet (sensory processing disorder)
J and B (multiple)
Ryder (childhood apraxia of speech)
Parker (joubert syndrome)
Catherine (congenital muscular dystrophy)
Shiloh (congenital heart defect)
Celia (posthumous spotlight for battan disease)
Zayn (dwarfism)
Thomas (dandy walker)
Jameson (limb differences)
Ethan, Cade, and Cody (duchenne muscular dystrophy)
Sam (multiple, caused by inter-uterine stroke)
Jett (pontocerebellar hypoplasia)
Albie (multiple heart conditions)
Mary Cate (apert syndrome)
Brayden (born with left eye, hearing problems)
Jack (cerebral palsy)
Green Family part 2 (adoption, multiple special needs)
Green Family part 1 (adoption, multiple special needs)
Raphael (down syndrome–looking to be adopted)
Emma-Kate (Pallister-Hall)
Aviana (traumatic brain injury)
Jameson (chromosome abnormality)
Cali (autism)
Jackson (short gut)
Reese (Lebers Congenital Amaurosis)
Harper (unknown)
Aaron (trisomy 18)
Isabelle (kabuki)
William and Mary (down syndrome)
Cole (dravat syndrome–severe epilisy)
Gracie (gastroschisis)
Ashlee (multiple–te fistula, tethered chord, etc)
Levi and Georgia (multiple–autism, epilepsy, Leigh’s)
Cole (Eosinophilic Esophagitis/Gastroenteritis)
Penelope and Lincoln (fragile X)
Deakon (ring 18)
Lily (down syndrome)
Malina (rare chromosome deletion)
Ethan (autism)
Joshua (norrie disease)
Daylon (epidermolysis bullosa or EB)
Dakota (anixic brain injury due to accident)
Jacob (spina bifida)
Jake (autism, mild mental retardation and epilepsy)
Davy (rare chromosome deletion)
London (incomplete lissencephaly)
Getty (SMA)
Jeremy (marshall-smith syndrome)
Sebastian (cerebral palsy)
Alex (undiagnosed genetic condition)
Lily (undiagnosed, has hypotonia)
Sam (severe food allergies)
Wyatt (undiagnosed brain abnormality)
Presley (SMARD)
Isabel (SMA)
Lincoln (chromosome abnormality)
Leah (rett syndrome)
Beckett (autism)
Maaike (cystic hygroma)
Isabella (kabuki syndrome)
Will (limb differences)
