Turns out July is Disability Pride Month and this is honestly the first I’m hearing about it! (In the past I’ve celebrated October as Disability Awareness month, but I think it’s actual Disability Employment Awareness month. Hard to keep these things straight!)
Anyway, July couldn’t be a more perfect month for our family to celebrate Disability Pride as it’s also Lamp’s birth month. 10 years ago when Lamp was born I could have never imagined how much my views of disability would change and that I would want to celebrate something like Disability Pride. Like so many first time disability parents I was full of fear about having a child with a disability. But by now you all know how much I love the disability community, all that I’ve learned from being the mother of a daughter with a disability, planning and building an accessible home, listening to and sharing stories about disability and teaching others, especially children, that being different isn’t weird, sad, bad or strange! Different is different, and different is OK! I know I’m not disabled myself, but I feel a lot of pride for the disability community and to be a part of it by extension through our daughter.
Instead of sharing more of my thoughts about disability, I thought that maybe I could do a short interview with Lamp (for any newbies here, “Lamp” is a blog alias) and let her share some thoughts that she has about being disabled, and living in the world in a body that is different from the norm. Enjoy!
  [readmore title= “Lamp had some really great answers to my questions–Check it out!”]
Lamp, I loved everything you said. Just about all of it matches my feelings – not as a person with a disability, but as a person of color. In particular, what you said about wanting to be an actress and to play a role that is about you, as a person, instead of a role about your disability. It aligns with my wish to be able to consume more shows and books about people of color that don’t just focus on their being people of color. But it also made me realize that I also wish that I could watch a movie with a person with a disability, without the disability being the story. Difference is so important and good, and we need more stories about different kinds of people.
I marvel at your coolness and wisdom!
Are you connected with groups of other kids with limb difference? How important or not important is it for you to connect with others who have shared your experience?
PS- I’m a professional classical musician and it’s very obvious that the disability community has little representation in our arts and entertainment industry. I loved your response about your goals for being an actress!
Dear Lamp, What a great interview! Kids & I agree it’s super dumb that disabled roles aren’t usually played by disabled actors. We think you’ll make a fantastic actress some day.
We also talked about how important it is to not assume someone can’t do something because of a disability. Best to ask/leave it up to them or (sorry) their parents. (I reminded my kids that there are lots of things I don’t let them do… because they’re kids and I’m their mom.) But you and your parents are amazing at finding a way to make things happen, and we can too.
The boy just wants to know when can we come to your house. We miss you guys like cray cray.
xoxo
Lamp, as always you are full of wisdom and insight. I have no doubt that you will reach any goals that you set. You have taught me so much, and I am grateful for that. And I miss you like crazy!
Thanks for the small window into life as you know it, Lamp. I always enjoy learning about (and from) other’s perspectives.
I agree Lamp! You ARE cool!! Thanks for sharing your wonder self self with me!
Hi Lamp! I am so grateful to have grown my own awareness regarding disability pride from your great interview! Thank you very much for sharing your own personal experiences as well as your hopes & dreams. Would you ever write your own children’s book from a disabled person’s perspective or perhaps co-write one with your mom? I love your bravery & joy for life, especially when you’re tearing around in your super cool wheelchair or on your even cooler hoverboard! Thanks for also showing me that life is meant to have some risks, because that’s often where we not only find great rewards but where stereotypes are smashed and dreams become reality. I think you’re t-n-t, dynoMITE!!!!!
Beautiful read! That little girl of yours is changing the world.
Hello to an articulate and smart girl! I just wanted to say thanks for sharing your thoughts on your mom’s blog. You seem like such an awesome person! And thanks to your mom for being dedicated to spreading awareness and acceptance. XO
Hello Lamp! You are a breath of fresh air in so many ways. One of the beautiful things you said that really resonated with me was being grateful for the small things.
I am a grandma of a little toddler with a chromosome disorder and we find ourselves celebrating every little thing she accomplishes. Her disability has made our family slow down and appreciate the smallest things in life. Thank you for your honesty and wonderful outlook on the world. I have no doubt you will do great things, and I look forward to seeing you in a movie that is not about a disability. You rock!!!
Hi, Lamp! I am a friend of your grandmother, Diana. I love her and your extended family. It has been a joy to follow the experiences of you and yours since your birth. I have learned so much and hopefully taught my grandchildren some important things about disabilities as well. You are very blessed to have been born to your family and I hope you will always appreciate them. What a cool and beautiful girl you are! I look forward to seeing all the wonderful things you accomplish in the future. Best wishes!
Lamp, I look forward to following your acting career. Do you think you would prefer screen acting, or stage acting?
Lamp, I think you should contact Reese Witherspoon and or Ron Howard with your ideas. They seem like they could be influential in supporting positive change in roles available in future projects. I agree that it’s time that writers/ producers create projects that are inclusive of actors with disabilities but not solely focused on their disabilities. Best of luck to you in your pursuit of acting!