There has been a lot going on in Lamp’s little world. Yesterday she (finally) got her new power chair in the morning…. And her new arm in the afternoon. (elbow anyone?) The chair was a complete surprise. As we walked into therapy we were greeted with the news, Her chair is here! Oh, OK. Definitely not...
Too much going on…one sickie, hopefully on the mend, appointments, chores, etc, etc. No. Time. To Blog. Except… I did want to share one quick thing. Have you heard of this new reality series on the Sundance channel called Push Girls? It’s a series that follows the lives of 4 women who–either through accident or...
It was another pretty relaxing weekend kicked off with a backyard picnic and a trip to the library. It’s been far too long since PSP and I have done the chapter book thing and now that it’s summer I’m excited for more reading time. Confession–I’ve never read any of the Little House on the...
My daughter Ashlee was born with multiple malformations, which we had no idea of she had until she was born. (TE Fistula, Cloaca, and Tethered chord). Basically all of her openings to her body going in and out were all out of whack. She had surgery at 1 day old just so she could swallow...
Remember how I’ve been wanting some updated family photos? Well we’re going to be in California this summer near the homebase of photographer Rachel Thurston. I’ve been aware of her work ever since she photographed a friends wedding and she’s an amazing photographer. And while I don’t know her personally (yet), she happens to be...
PSP’s preschool bestie. So glad they’re only 5….if these 2 were teenagers they’d be trouble with a capitol T. Friday was PSP’s last day of preschool. I’ve been waxing nostalgic lately with this being my final days of having both my chicks under my wing day in and day out. And I’m kinda relieved...
Hi, We are the Jensens! Curtis and I have been married for 12 years. He is a computer guy who likes to surf on the side and I am a Mom (and quilter when I have a moment) to our 2 kids, Georgia and Levi. They are twins…although they couldn’t be more different, opposite...
Hey, I'm Amy!
I'm an author, artist, and disability advocate. I live with my handsome husband and three beautiful daughters in Cincinnati, Ohio.
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Exciting stuff! We cant wait to see you guys and I will definitely keep y'all in our prayers. (the y'all was for texas btw)
I hear alot of positivety in that wory as well. What a sweet chair. I am sure she at first thought that she would loose her mobility. She is such a cutie. She has alot to overcome but she is a strong little one. So sorry about the tummy situations…..hopefully it is just an adjustment. So hard waiting it out. Prayers for sure. (((((HUGS)))))
I will be praying for your sweet Lampity and for you, her mama, because I know you both need it! I am sorry for so many things happening at once, especially when Lamp is not feeling well. I pray for her health, that she may not have to go in the hospital, but that her unexplained sickness will be over quickly. I also pray for all the mama worries you are having, and for adjustments to Lamp's new "helps" to go absolutely superbly. Her new arm and wheelchair are exciting developments! Sending you all hugs.
I'm so sorry, prayers to you guys…hey, could it be the anti-biotics they probably gave her for the procedure? Sometimes that can make the kids have terrible diapers for 2 weeks or more.
Praying for you sweet little Lamp! If you can stack block after block with your toes, you can surely beat out a bug messing with your system.
I am so happy to see the beautiful new arm and the CHAIR! She has a new world now.
I don't know you guys but I think about you often. You are a pretty freaking awesome family. You have so much on your plate but you handle it with grace and so much love.
Sending you best wishes over the next couple of weeks. I have faith that Lampy will heal up and dominate her chair and arm in no time!!
I will be praying for you and your sweet little lamp!
xoxo
I will be delighted to pray extra for her. I love that big sister rode the chair.
Prayers- Done. Excitement for Progress-Done. Love- Always.
I have been lurking around for about a month but today just wanted to say how much I enjoy reading your posts and that I will most definitely be keeping Lamp in my prayers. I think Tyler above said it best in the last paragraph, so I'll just echo those sentiments.
I hear you on the worry-o-meter. Why does it not get easier? We miss you guys. Prayers to TX.
Oy. That's a lot. I just said a prayer for your beautiful little girl. And for you.
It's exciting to hear about her new arm and chair, though!
Thanks for all your sweet notes and prayers. I was really worried this morning as we've had a rough couple of nights…we're not out of the woods per se, but things are looking better. I listened to my wise husband and made some homemade chicken noodle soup and the broth was the first thing she has actually ASKED to eat in days. Hopefully we'll have more good news. Thanks again for praying for my sweet baby…it means a lot.
Sending lots of love your way!
Over the moon for you all! Once she gets the hang of both the new elbow and the chair it's going to be the new normal :)))) my heart is bursting with support and admiration for you all.
hope she keeps making progress getting better! lots of things to digest for now, but sounds like some exciting things on the horizon, once you can focus on that when she's well! my prayers are with her (& you)
Hooray for chicken noodle soup! Hope she feels better soon. What an amazing kid, and family.
Those are two big happenings in one day. Wow! I hope Lamp's little tummy settles down. I'm glad she asked for the chicken broth, and I know you put extra love in the soup.
Many many prayers being sent that way. I know all too well the stress that comes with trying to get your child to gain weight/keep weight on. It's SOOO stressful. I'm sorry.