Hey guys, no spotlight today but don’t despair. People send me links, articles and video’s from time to time featuring other people with limb differences… and I think that’s kinda sweet. So in lieu of a spotlight today, I thought I’d pass along some of these gems from around the web. Hope you enjoy! Everyone...
While having a little weenie roast on the beach last night, PSP bit into a piece of watermelon which caused her very loose tooth to be pushed out of place, yet remain attached. She showed her dad who promptly said, pull it! So she did. And that’s the story of how my oldest child lost...
A couple weeks ago I decided it was time to go through big sisters art work–it was time to clean, purge and save. It’s hard deciding what art work to keep and what art work to toss as this becomes a battle between the sentimental artist mama vs. the I-don’t-want-to-be-on-a-future-episode-of-hoarders mama. But I think I’ve got...
Haven’t seen this since 1986. Pretty sure it was illegal then too. Must get chocolate chips. Success! Do myself! Do myself! She screamed as she charged toward the big spiral slide. Making her own mac ‘n cheese. FINALLY. Stop judging. We gave her an oven mitt. Ipad + Big Sister = Best wait in the...
Hey everyone! As you probably remember I decided to re-post a 2-part interview I did with Reagan of Reagan’s Blog and Hairdresser on Fire. We did this interview a while ago on the now defunct blog Bloom. It was doing this interview with Reagan that gave me the idea to do the Special Needs Spotlight....
If you’re like me you might have seen pictures and previews for this movie Being Elmo and thought…that looks interesting. And if you’re like me, you put in on your maybe someday docket, and forgot about it. Well if you’re really like me, then you and your husband scanned through Netflix the other night, made...
Do you remember this little bedroom before and after I posted here? Well this picture was the after. Only I didn’t love it. It just wasn’t right. So we added another crate, unpainted, mixed it up a little and tried it again. Yeah I like it a lot better. While I’m a...
Hey, I'm Amy!
I'm an author, artist, and disability advocate. I live with my handsome husband and three beautiful daughters in Cincinnati, Ohio.
categories
purchase when charley met emma
Let's be friends!
To add to I'm sure what is an endless list of links that people send you…These guys are really cool. I met Luca when we were on the same swim team as kids. http://www.illabilitiescrew.com/
And here's a nice interview him: http://www.panoramitalia.com/en/life-people/profiles/luca-lazylegz-patuelli-excuses-limits/7/
And just as a note, I think anytime a person has a characteristic that makes them different, there is a pressure to let that define them. And while Luca has certainly made his disability a big part of his life and his career, I think it's worth sharing that I'm under the impression that that was very much his choice. As I kid, I actually don't remember being particularly impressed with him, because he just seemed like a normal kid on the team. No one gave him extra attention. (And I mean that in a good way–whatever accomodations he needed were just provided like it was no big deal.) He had friends. I remember him as one of the "cool kids", whatever that meant to me at that age.
I guess my point is, I just hope that one day Miss Lamp knows that when readers like me send links and praise her amazing accomplishments, we are calling attention to her uniqueness in only the most loving way. But that doesn't mean we think Lamp=limb differences. Of course, limb differences will always be a huge part of her life, but that doesn't push out of the picture the other huge parts of her life: being a toddler, a sister, a daugher, a cutie…and one day a teenager, a woman, a student, a [whatever career she chooses], whose hoobies include ____, whose favorite color is ____, who always wears her hair ____, whose pet peeve is _____.
Lamp, you have fans. For a million reasons. Only one of those is your limb differences.
I love your blog. I just love it.
Alexis–thank you! I couldn't agree more. I have never wanted her or even our family identity to be about Lamp and her limb differences. Many times it does take center stage due to needs, changes (a new prosthetic, power chair) or even just her figuring new things out. On the one hand I get why she gets some attention for her differences and how she adapts…I'm her mom and I find it fascinating and inspiring. However just like any mom I feel that way about both my kids and there is something well-of-course-she-figured-that-out-no-big-deal about it too.
Thanks for sending those links—I'm loving the illabilities crew. Just people doing what they love to do.
Hilary–hugs to you. You're awesome.
Oh wow, oh wow, oh wow!! What an amazing job that mother has done! I bawled my eye's out. Two such beautiful, confident and happy boys, they are every mother's dream.